“Just so everyone is aware, there is a bunch of misleading info being spread around re: ALS research - the “27%” figure is based on previous years’ annual funding; furthermore, the remainder goes to improving the quality of life of those suffering from ALS. Given that the annual funding is approximately 16M, that’s just over 4M spent on decreasing their suffering. It isn’t greed, it’s a lack of money.”
Shut up already.
And the next time you start to complain about a charity either a) working on multiple fronts (because that’s what ALSA does—both seeking a cure and helping people suffering now) or b) daring to have administration expenses—let’s see how long you can last, much less tackle a cause, without printer paper and an internet connection.
As someone who has watched a family member die from a neuro-degenerative disease; funding to develop better wheelchairs and bedsore creams is *just* as important as funding research to cure the disease itself…
A friend of mine posted an update from one of HER friends to FB earlier. Her dad has ALS. The ALS foundation came out to see if they could put in a ramp for his wheelchair, but they couldn’t afford it because of the kind of ramp he needed for the kind of house they had.
This week they called back and said hey, the thing is, we suddenly have a bunch of money, so we’re coming out to build that ramp. And they did. She posted pics.
So if you feel like bitching about the ice bucket challenge…reconsider.
AND if you want to get involved beyond the Ice Bucket Challenge, or if you want to get involved in the future, consider joining/starting a team for the Walk to Defeat ALS. There are walks all over the US, so you should be able to find one in your area. Unlike Relay for Life, these walks are generally short, only a few miles, so the time commitment is low. And if you can’t join in person, but you have the money, you should donate through a team.
You can tick a checkmark when you donate to say “I just want this to go towards research”. I DIDN’T tick the checkmark, because immediate care and benefit is also important. If it’s important to you that your money only go towards researching a cure, tick the checkbox and it will.